A 5-YEAR-OLD born with a rare skin condition isn’t letting the disorder stop her from being a fun, playful and outgoing little girl.
Harper Foy, from Seattle, Washington State, was born with a rare condition, called Harlequin Ichthyosis, that leaves her with thick scaly skin across her entire body.
The disorder, that affects around every 1 in 500,000 people, has no known cure.
Angie, Harper's mum, does what she can to make Harper as comfortable as possible, which often involves moisturising Harper from head to toe and bathing her up to three times a day.
In spite of her condition and her rigorous medical routine, Harper has shown that she won’t be prevented from enjoying her life to the full.
Described as a ‘born entertainer’ by her mum, Harper loves to sing and dance, and also likes to run around and play football with her old brother.
At just 4 years old Harper also proved she could help to redefine conventional beauty standards, by signing for TCM Models on a two year contract.
Harper and her mum hope sharing Harper’s story will serve to inspire others with the condition.