als rally 5.21.20

Showers as well the ... deck this afternoon in just a little bit ... thanks alyssa may is aos awareness month and a lexington manor is traveling the country raising awareness about the disease the ... still has no ... that man is jeremy atherton and this journey took him over to the nations ... capital for a protest ... we've actually had jeremy joining us by phone this morning talking to us ... was talking to you ... are so glad you could join us ... now you have a lot even very ... about this ... but for folks maybe don't know what all that entails ... more about the disease and how it affects ... you everyday ... world over him ... to neuromuscular disease ... so basically my ... brain trying to ... do my voluntary but ... was ... in a nutshell the wall ... in your arms and ... work control him swallowing ... and eventually the majority of the ... the ... aubrey and him so badly to go your writing ... will start on cognitive level older ... but your travel show ... will ... as mentioned to you went to washington dc this week for wha been calling ... body back rally ... tolls with the goal of this ... well ... we wanted to represent to the government but we need an executive order ... releasing no ... viable treatment for virtually ... there ... is a still ... go after years and years ... were still under dr. rowley's clinical trial and ... not happening ... you one thing with the goal of 19 people with print of the government confessed to ... the fda ... around 300 around 350 years ... there's not enough milk sure no treatment no ... to help her so basically when ... you went when her away from and the ... representation of the body bag is ... what you're diagnosed with a list of the and you we want the government ... to treat our disease around or ... peter ... out another in america with him have the fda released all over something ... you where we can actually have treatment to prolong our large ... your cute graduate from college ... your grandkids we don't have our typical logic that is of your combat ... looking at the video now from ... protest that ... i mean how do you think rally when did you accomplish what yo set out to and also ... do you think your message was ... well ... you know we had about 65 people on show up ... and the pastor ... by people stopped on the bicycle to know what were doing ... the secret service ... will ... police alters everybody it was around the if nothing else ... government didn't hear congress here we still screwed our message him and i think we actually accomplish what we ... all given ... everybody's in a state and the work ... work letter ... but i think we did actually accomplish ... what we wanted to do hopefully the government curtis ... trouble ... found executive order ... 11: ... present from found executive order frantically looking people, would be glad to check ... you know you started your new journey to help raise awareness about all of this ... post your link to your page on our facebook page today kentuck just ... want everyone to come to be aware of all of this ... doing and you're traveling the country essentially ... hoping to raise awareness ... jeremy ... you so much for talking to us ...