Long Island family advises people to wear masks to protect daughter who has rare disease

As you step into the Benthal’s backyard you can’t help but notice a bright yellow shack called “Jo’s Cottage”.

This bright house belongs to Johanna, the Benthal’s youngest daughter, who has had over 100 brain surgeries since she was born.

The shack is her art space, where she releases her creativity and spends the majority of her time especially since it’s not the best idea for her to go anywhere due to the coronavirus pandemic.

Johanna’s parents, Eileen and Steve have had to wear masks and other varieties of PPE equipment throughout Johanna’s ins and outs of the hospital for the past 23 years.

Johanna was diagnosed at three-months-old with a large mass on her brain stem.

In the beginning, they thought...

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