Spinal muscular atrophy

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'Resilient' St Albans boy given seven months to live now thriving two years later thanks to life-saving treatment

'Resilient' St Albans boy given seven months to live now thriving two years later thanks to life-saving treatment

Bishops Stortford Observer 06 Jun 2023

Charlie and George Mosey have recently founded the Rally Round Rupert charity, following their newborn son Rupert’s experience..

Match to be played in honour of devoted Derby County fan who battled debilitating condition
Derby Telegraph 30 Apr 2024
Sister's tribute to the girl who captured the hearts of Immingham, 25 years on from her death
Grimsby Telegraph 07 Apr 2024
Spinal Muscular Atrophy: Indians who need $2.1m drug to fight a rare disease
BBC News 06 Nov 2023
Derby twins with spinal muscular atrophy celebrate 18th birthday
BBC News 31 May 2023

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Spinal muscular atrophy media coverage

The world's most expensive drug and the little lives it is saving

The world's most expensive drug and the little lives it is saving

Rumble 25 Aug 2022

The world's most expensive drug is helping save the lives of children. Gene therapy treatment for spinal muscular atrophy..

The life-changing power of assistive technologies | Jane Velkovski

The life-changing power of assistive technologies | Jane Velkovski

TED

08 Jun 2022

Young mum facing life in wheelchair cared for by her husband given drug likely to change her whole future

Young mum facing life in wheelchair cared for by her husband given drug likely to change her whole future

Wales Online

30 Jul 2022

Newborn screening for spinal muscular atrophy ‘results in more children walking’
Belfast Telegraph 17 Jan 2023
Spinal muscular atrophy: Baby heel prick test 'could be life-changing'
BBC Local News 04 Jul 2022