special needs positives

special needs positives

"it is a lot to be at home with your kids all the time, but i have loved just having the extra time."

As most parents will tell you?

Children grow up so fast.

Katie haire "i find that right around lunch time every day he has this burst of energy."

A moment katie haire and her husband joel?

Didn't get the chance to experience before the pandemic?

As full time working parents.

"he is funny.

If he doesn't like something or he thinks something is silly, he will make faces; scrunch his nose."

"for most people, that is normal for tw?yea?olds, but for us, we never had any guarantees that we were going to have that interaction with him."

Truett was born missing part of his brain?

Affecting his ability to communicate and slowing his physical development.

Making the possibility of a illness hard to catch early on?

Especially a virus that doesn't show symptoms until days even weeks after exposure.

"he can't communicate with me and then all of a sudden he is really sick.

So that piece of not being able to really know until it is almost too late, is what scares me the most."

It is why?

When katie knew she would be working from home they decided not to send truett to his daycare?

Milestones?

A part of easterseals that is still offering services for special needs families.

Fortunately?

The team of physical therapists and doctors that truett sees regularly?

Pivoted quickly providing telehealth services.

"i was really nervous, like 'oh shoot.

I am not trained in this.'

But out therapists have been awesome.

They walk us through each thing and we touch base and we make goals; the same way we always would.

But it is almost like them instructing me a little more."

The change to telehealth has also saved the family?

Several trips to specialists in indy?

Something katie says the doctors have already given a green like to continuing after the pandemic.

"truett sees 7 to 8 specialist and only one of them is in evansville."

"so it has been really great to basically save that time."

Time now spent?

Safe at home.

"i hope 20 years from now we look back and truett has memories of our time together or my husband and i have memories of the things we've done.

A positive outlook on a lif?changing moment in our lives?

Jessica hartman