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U.S. Food and Drug Administration Approves ORKAMBI® (lumacaftor/ivacaftor) for Use in Children with Cystic Fibrosis Ages 6 through 11 who have Two Copies of the F508del Mutation

u.s. food and drug administration approves orkambi® (lumacaftor/ivacaftor) for use in children with cystic fibrosis ages 6 through 11 who have two copies of the f508del mutation
BOSTON--(BUSINESS WIRE)--FDA Approves ORKAMBI® (lumacaftor/ivacaftor) for Use in Children with Cystic Fibrosis Ages 6 through 11 who have Two Copies of the F508del Mutation
Business Wire Also reported by •FinanzNachrichten.de

Cystic Fibrosis: Ensuring adequate nutrition

People with cystic fibrosis (CF) need help to ensure they are getting correct nutrition and the right amount of enzymes. They also need constant reminders. Researchers are now developing a digital..
Science Daily

Videos for "Cystic Fibrosis"

News video: Wife Of Real-Life &apos;Fault In Our Stars&apos; Couple Dies Just Days After Husband

Wife Of Real-Life &apos;Fault In Our Stars&apos; Couple Dies Just Days After Husband 01:36

The young married couple whose love story read like a real-life version of "The Fault in Our Stars" have lost their respective battles with cystic fibrosis just days apart from each other,..
Source: InsideEdition -

News video: Husband, 25, in Real-Life Fault in Our Stars Couple Dies After FaceTiming Wife: &apos;We Wanted to Keep Living&apos;

Husband, 25, in Real-Life Fault in Our Stars Couple Dies After FaceTiming Wife: &apos;We Wanted to Keep Living&apos; 00:58

Dalton Prager, 25, who like his wife Katie, 26, was born with cystic fibrosis – a progressive genetic disease that affects primarily the lungs, and whose patients have a current average life..
Source: People -

News video: Cystic Fibrosis Advocacy Summit Being Held In Michigan Saturday; Audio Excerpt

Cystic Fibrosis Advocacy Summit Being Held In Michigan Saturday; Audio Excerpt 02:30

WWJ's Laura Bonnell will host an advocacy summit Saturday to raise awareness for Americans dealing with cystic fibrosis.
Source: WWJ 950 NewsRadio Detroit -

News video: People Are Talking: Passion for Food and Wine

People Are Talking: Passion for Food and Wine 02:52

Passion for Food and Wine is a culinary benefit for the Cystic Fibrosis Foundation.
Source: WJZ Baltimore -

News video: Horizon Carrier Screen

Horizon Carrier Screen 06:37

Duchenne muscular dystrophy is the most common fatal genetic condition diagnosed in childhood. The condition primary affects boys, and about 1 in 3,500 boys are born with Duchenne each year. The..
Source: Rant Sports -

 

Plymouth mum vows to 'never give up' in organ donor battle

plymouth mum vows to 'never give up' in organ donor battle
A mother whose son died while he was waiting for a lung transplant says she will never stop fighting for organ donation to be made compulsory.Jon Paul Oxley, who had chronic cystic fibrosis, died in..
Plymouth Herald

Real-life Fault in Our Stars wife with cystic fibrosis dies

real-life fault in our stars wife with cystic fibrosis dies
Katie Prager and her husband Dalton Prager met on Facebook in 2009. Dalton Prager died Saturday at a St. Louis hospital from cystic fibrosis, which clogs the lungs with mucus.
MailOnline

Real 'Fault In Our Stars' wife dies from cystic fibrosis days after husband's death

Katie Prager died due to complications from the disease and a lung transplant at the age of 26
Independent

Terminally ill US couple die days apart

terminally ill us couple die days apart
A young married couple who bonded through their shared struggles with cystic fibrosis have both died within days of each other.
BBC News

Alistair Brownlee's proud father jokes his son 'could have been a bit gentler' with stricken brother Jonny

alistair brownlee's proud father jokes his son 'could have been a bit gentler' with stricken brother jonny
Dr Keith Brownlee, a director at the Cystic Fibrosis Trust, watched in horror with wife Cathy as son Jonny started wobbling 'like a horse' at the end of his World Triathlon Series finale.
MailOnline

Fault in Our Stars inspired Dalton Prager passes away from cystic fibrosis

fault in our stars inspired dalton prager passes away from cystic fibrosis
Dalton Prager, 25, the husband from the real-life 'Fault in Our Stars' couple, died Saturday afternoon at Barnes-Jewish Hospital in St. Louis. Prager died from complications stemming from cystic..
MailOnline

Cheltenham man swims three miles through open water for his late...

cheltenham man swims three miles through open water for his late...
A man from Cheltenham has successfully raised over £400 in memory of the love of his life who recently died from cystic fibrosis.James Brooking, 22, who completed the three-mile open water swim in..
Gloucestershire Echo Also reported by •Gloucester CitizenStroud Life

Parents may misuse results of infant genetic testing

(Reuters Health) - When parents find out their newborn carries a gene mutation linked to cystic fibrosis, many use the information unexpectedly or inappropriately, according to a new study.
Reuters

Walsall woman told she wouldn't live past 7th birthday enjoys new...

walsall woman told she wouldn't live past 7th birthday enjoys new...
A BATTLING woman who was told she would not live past her seventh birthday is enjoying a new lease of life aged 46.Elaine Betts did not take her first proper breath until the age of 36 as she had to..
Walsall Advertiser

Five-year-old cystic fibrosis sufferer gets dream wedding hours before dying

five-year-old cystic fibrosis sufferer gets dream wedding hours before dying
Five-year-old Mary Massey, who suffered from cystic fibrosis and chronic pneumonia all of her life, was given a dream wedding on Thursday only hours before she passed away at hospital in Texas.
MailOnline

Swansea City players welcome woman with 10 months to live at...

swansea city players welcome woman with 10 months to live at...
A SWANSEA Valley woman who desperately needs a double lung transplant shared her story with Swansea City players at their Fairwood training base.Kim Hodge suffers from end stage cystic fibrosis and..
Llanelli Star Also reported by •Carmarthen JournalSouth Wales Evening Post

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